Post Tubal Ligation Syndrome - What Can Be Done
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Among the methods of stopping conception available to women is the method of having their tubes tied. Along with the normal surgical risks a woman undergoing this procedure has to be aware of, there is the addition of Post Tubal Ligation Syndrome. Looking around the Internet will provide you with story after story of the painful and embarrassing experiences of the women who suffer it.
For those women who suffer from Post Tubal Ligation Syndrome, also called PTLS, there is a long list of possible symptoms they can have. Upon researching this topic, one can find a popular list (seen on several websites) of 35 possible symptoms. Within the personal stories, most women seem to suffer from terrible mood swings, longer and/or heavier bleeding during periods, weight gain or inability to lose weight, awful PMS, problems sleeping, low to no sex drive, migraines and very severe, even crippling, abdominal pain. Cramps is too wimpy a word for what these women report.
As if the above wasn’t enough for these ladies to suffer through, they have to suffer further ignominy from their doctors and medical staff. Most doctors do not believe ptls even exist. One such doctor calls it a “medical myth” in an interview. So these women suffering these symptoms will be met with derision and suggestions of seek counseling and use anti-depressants. At the very best, they will be told to just learn to live with it.
The other treatment options these women suffering ptls will most often hear appears to be going on birth control pills or to have a hysterectomy. Some doctors think that the reason for the problems is that after the tubal ligation the women are no longer taking birth control pills or that they have just gotten older. So the best way to fix it is put them back onto birth control pills or just get a hysterectomy.
Our doctor quoted above, the “medical myth”, says women should be removed from birth control pills several months in advance of the actual tubal ligation surgery. This will given them a chance to see what their periods and pms are really like without the hormones of the birth control pills. If the problems stem from age, I suppose you are just going to have “to learn to live with it.” But this advice does not seem to be pertinent to the women who were pregnant and get the tubal done at delivery or shortly thereafter. Nor does the age cause seem to relate to women who are in their 20’s.
Informing women about to undergo the tube tying surgery would be one thing that should be done. Most have no idea that ptls is even a possible complication to the surgery. Mostly they are told that there is a chance for an infection, hemorrhage or a problem related to the use of general anesthesia as you would have in any surgery. What is added for this particular surgery is the additional complication of an ectopic pregnancy. This information is from the FDA’s own website. The “Coalition for Post-Tubal Women” is trying to accomplish a change in the consent form. Better counseling about this possibility would be good as well but since many, dare I say most, doctors believe this to be a mythical syndrome, who knows if it will ever happen. At least let them know so they can do their own research and make their own decisions if this is something they want to risk.
Even if a better consent form and counseling were available, it still won’t help those who have had the surgery and are now suffering the effects of post tubal ligation syndrome. You could try the options talked about above like birth control pills or a hysterectomy. Or you could try a tubal ligation reversal surgery. In a study conducted by Dr. Berger of Chapel Hill Tubal Reversal Center on the women who have come to him and complained of having the symptoms of ptls, 90% saw a reduction in their symptoms. You can read the stories yourself at http://forums.tubal-reversal.net/ where the ladies are happy to help as well as nurses who provide information.
The women on the message board at Chapel Hill Tubal Reversal Center and in stories you will find there will tell you how they have felt better and had a return to their old lives by having a tubal reversal surgery. No more suffering from post tubal ligation syndrome at best for the vast majority of the ones who have suffered from it. Perhaps, given the particular circumstances of any woman of course, a tubal ligation reversal is the best answer for someone suffering from ptls. Talk to your doctor, or better yet, discuss this with Dr. Berger’s staff.
